"This site has been developed in the hope that it will provide information and encouragement to those affected by this complex condition and provide insight for those involved in the management of the disorder."
"The IPBF is a non-profit, voluntary, umbrella organization, active worldwide, that promotes knowledge and awareness of interstitial cystitis (also known as painful bladder syndrome, bladder pain syndrome and hypersensitive bladder syndrome) and associated disorders among patients, patient support groups, health professionals and the general public. The IPBF promotes the interests of IC patients around the globe."
"The Interstitial Cystitis Association (ICA) advocates for interstitial cystitis (IC) research dedicated to discovery of a cure and better treatments, raises awareness, and serves as a central hub for the healthcare providers, researchers and millions of patients who suffer with constant urinary urgency and frequency and extreme bladder pain called IC. (IC is also referred to as painful bladder syndrome, bladder pain syndrome, and chronic pelvic pain.)"
"Founded in 1995, the Interstitial Cystitis Network is a woman owned,"social advocacy" health education company dedicated to interstitial cystitis and other pelvic pain disorders. Using the internet, we create innovative solutions to the pressing problems facing patients diagnosed with urologic conditions, medical care providers who care for them and the research community seeking new treatments and cures. For the past 16 years, we have provided critical 24/7 support to patients in need, developed new educational materials, conducted vital research, provided webinars/lectures and created IC awareness campaigns, all at NO COST to the patients who visit our website."
"The National Center for Pelvic Pain Research (NCPPR) is a center devoted to research and treatment of pelvic pain syndromes in men and women using the Wise-Anderson Protocol. Pelvic pain syndromes treated at NCPPR include prostatitis, pelvic floor dysfunction, levator ani syndrome, chronic pelvic pain syndrome, interstitial cystitis, urethral syndrome, and pelvic floor myalgia, among other diagnoses."
"The National Vulvodynia Association (NVA) is a nonprofit organization created in 1994 to improve the lives of individuals affected by vulvodynia, a spectrum of chronic vulvar pain disorders." In accomplishing this goal, the NVA will:
educate affected women about vulvodynia to enable them to make informed choices about their treatment
encourage patients to develop self-help strategies to deal with the physical and emotional components of this disorder
provide a support network for interested members
involve and educate loved ones to promote a more supportive family environment
coordinate a centralized source of information on suspected causes, current treatments, and ongoing research for health care practitioners and patients
emphasize a coordinated interdisciplinary approach to patients' medical care
work cooperatively with other health organizations to improve our understanding of vulvodynia's relationship to other disorders
educate the public to bring attention to vulvodynia as a serious women's health concern
encourage further research to find more effective treatments and eventual cures for vulvodynia
"The Australian and New Zealand Vulvovaginal Society (ANZVS) is a group of approximately 70 gynaecologists, dermatologists, pathologists, sexual health physicians and allied health professionals that have a professional interest in vulval diseases. The ANZVS was founded in 2003."
The goals of The Australian and New Zealand Vulvovaginal Society are:
To promote improved care of women with vulvovaginal diseases
To promote improved understanding and education of both health professionals and the public of the nature and management of vulvovaginal diseases.
To promote clinical investigation and research into vulvovaginal diseases
"The VP (Vulvar Pain) Foundation was established in 1992 as a nonprofit organization to end the isolation of women suffering from vulvar pain and related disorders (fibromyalgia, interstitial cystitis, irritable bowel). The Foundation’s purposes are to give reliable information, hope, safety, and success to sufferers and their families, to advance the standard of medical practice in treating vulvar pain syndrome, and to promote scientific research.
An international organization, the Foundation publishes The VP Foundation Newsletter and The Low Oxalate Cookbook, sponsors research, and coordinates a network of personal support and other resources for its members. It also conducts a program of public education and outreach."
"Our big mission at vaginismus.com is to help as many women as possible with vaginismus and related sexual pain or penetration problems.
Since early beginnings with organizers Mark & Lisa Carter (experienced vaginismus in 1991), vaginismus.com has remained a small but vibrant independent organization working hard to care daily for the thousands of women encountering vaginismus and seeking help and solutions. We reply to all emails and inquiries about vaginismus, usually the same or next business day, and work hard to support and answer all questions as women go through our programs through our moderated private forum, private live chat, emails and phone calls where warranted.
As part of our mission to bring help to women with vaginismus, we have assembled comprehensive vaginismus self-help materials. The vaginismus kits and other products are regularly used by medical professionals throughout the world."
To promote and protect the physical and mental health of sufferers of vulval pain through the provision of support, education and practical advice
To advance the education of the general public in all areas relating to vulval pain
We offer advice and information on all vulval pain matters. You can read detailed information about Vulvodynia, Vestibulodynia, Lichen Sclerosus, and other conditions. We also have information on sex, pregnancy, and other good advice. Find out more about us."
"Welcome to the website of Vulvodynia Support NZ. This site is intended as a resource for women with vulvodynia and their partners. If you have vulvodynia, or think that you might, this site is for you. If your partner has vulvodynia, this site is for you. Vulvodynia isn’t well-known, even in medical circles. Even within gynaecology, it’s hard to get a mention. Women with vulvodynia deserve support and respect. We deserve effective, accessible treatment. Most of all we deserve not to be left thinking that we’re the only one."
"Until recently the treatments for Vulvodynia have been limited to the avoidance of vulvar irritants, diet, use of oral and topical medicines, vulvar injections, and surgery. The work of Howard I.Glazer Ph.D. has led to the development of the first non-surgical, non-drug treatment with scientifically demonstrated clinical effectiveness in the treatment of vulvodynia."